Let’s talk about BREATH HOLDING SPELLS in infants.
Nemit experienced these spells twice, a couple of months back and that was the most horrifying incident where I just went blank and was shivering with shock and fear and had no idea what action to take in response to that.
It was the afternoon time and I was trying to make him sleep, he was sleepy, little cranky and crying at the same time. The door bell rang, as I was alone at home had to go and check which made him cry even louder. I couldn’t step out of the room because within a few seconds he stopped breathing, yes he was not breathing at all.
When I turned around to look at him he was crying but there was no sound and his face & lips were turning blue, he was trying to hold me but couldn’t. I was so terrified, completely blank at that moment. I was just tapping his back clueless as to what to do and how to bring him out of this, somehow after an interval of around 40-50 sec, his breathing came to normal and blood flushed back in.
He always cries like this, taking long breaths but this time it was too intense. I turned to Google and searched frantically for hours about it.
Came to know about the term – Breath Holding Spells.
- These are the episodes in which a child cries because he is hurt, frightened, or upset, turns pale or blue, and loses consciousness.
- They typically start between 6 to 18 months of age and usually stop by the time the child is 7 years old.
- The child will start to cry and then will make no sound although he will appear to still be crying.
- The child cries and is exhaling or breathing out, not inhaling or breathing in.
The only thing which calmed me was reading further…
- Although breath holding spells are frightening to watch, the child is not harmed by them and they do not cause any brain damage.
- There is no treatment intervention that is needed, keeping the head down restores blood flow to the brain.
- While considered by many to be “attention seeking” behavior, these spells are not intentional; they result from an involuntary reflex, and the child has no ability to control them.
- Sometimes these spells are linked with anemia so it’s always good to mention about iron deficiency to your baby’s Pediatrician to rule out any further problems.
There are 2 classic forms of Breath Holding Spells–
- Cyanotic (respiratory) spells – they are often provoked by an upsetting situation, in anger or in frustration. The child usually cries loudly and then the cry gradually becomes noiseless. The child turns blue (cyanotic) and then the child may again start breathing or may proceed to lose consciousness. Sometimes, fits or seizure like activity may follow the loss of consciousness.
- Pallid (cardiac) spells– they are usually seen following a painful or fearful experience. The child becomes pale and often loses consciousness within a single gasp or cry.
The pain or frustration causes the heart rate and blood pressure to change and triggers the loss of consciousness. Anemia may cause a child who has breath-holding spells to have more frequent episodes, but anemia is not the cause for the episodes.
Although breath-holding spells are frightening to watch, the child is not harmed by them and they do not cause any brain damage or result in epilepsy.
We met our doctor, she asked us to get his Iron Studies blood test done. When we got the reports we were shocked to see the digits.
Below is the snapshot of Nemit’s report.
We were suggested to start Iron Syrup (Ferrous Sulphate) as it was clear from the report that low level of iron could have played a role in these spells. But our experience with the Iron supplement was not good as soon after the 1st Dose, Nemit suffered with a very bad case of stomach upset and diarrhea which took around 10 days to recover completely and he lost 2 Kgs weight.
We went to the doc and this time she changed the Brand and again asked us to try giving it. As per the doc, there is no way to check which medicine will suit him apart from using hit and trial method.
But we were too scared to again experiment with Nemit’s health, though we knew it was the best way to improve his iron levels, we dropped the idea of giving medicine directly and started introducing more of iron rich food in his diet. Since then there had been ‘No spells’ and we are considering the iron rich food to be the reason.
We will be waiting till the month end to get the blood test done again to check if there is any improvement in iron levels. We are keeping our fingers crossed, can’t see our little baby suffer like this.
ETA– I have a great news to share with you all, as you may have read above how Nemit experienced Breath Holding Spells and how his low Iron Levels played a major role in those freaking episodes. It was back in July when we started with a dose of Iron and apparently Nemit’s body rejected it resulting in severe case of indigestion. We were too scared to start with another medicine hence made few changes in his diet and incorporated lots of iron rich food in daily meals.
We went for another blood test in the first week of September and were pleasantly surprised to see the reports, it was a miracle for us, without giving medicine we were able to bring Nemit’s iron levels in normal range. You can have a look at the above attached report.
Here, I want to advise parents not to panic in such a situation, it was my mother who wanted to start iron rich food in place of medicine and also asked us to again get the test done whereas our doc didn’t say anything for second test neither she gave us an option to avoid medicine. Sometimes trusting your instinct also work wonders.
Hope this information is helpful for new parents and they can be prepared in case situation like this happens.